Post Operative Expectations. This was an amazing surgery within seconds of becoming conscious I noticed how loud everything was. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. As days pass, I feel that this might not be a good decision. Muscle cramps. Some of what I posted before was right after surgery via my smartphone. None for cancer, but enough to make me a believer in getting a second opinion. They ran blood tests, no infection or blood clots . Older posts I saw explain that because the facial nerve were cut and will take few weeks to months to heal. 2010. We present a case of a patient who returned with a neck swelling 6 days following thyroidectomy and central neck compartment lymphadenectomy for suspected thyroid carcinoma. Im going to try to remember to request a copy of my medical records when I go in a few weeks to see my oncologist, but what numbers does your doctor like to keep you at? I was a bit hysterical as it common to do TTs on children as early as 1 year of age with MENS. Although, some people swear they can't hear it, I can hear it all the time. I've been on levothyroxine and calcium supplements since I was in the hospital and report no adverse reactions to any of that (fingers crossed on the thyroid medication continuing to be smooth for the most part once all my remaining natural hormone is gone). I met with two different surgeons. An observational case-control study was carried out. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. Initial risk classification was determined as T3N1bM0, American Joint Committee on Cancer (AJCC) 8th edition stage 1, and intermediate American Thyroid Association risk. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. Do not scrub the wound or put pressure on it with high pressure water or your fingers. The last 2 days he has been dizzy, lightheaded. I still have poor vocal range and intensity. On the 28th I had my appointment at Dermatology, recommended by the ENT people at Madigan. Because I had such an intense spread, my surgical experience was a bit different than others. Disclaimer. I will say the fear I experienced made everything seem like a breeze following the surgery. 5) Does the TSH suppression level really effect the possibility of spread? I apologize in advance for the extreme detail in this that may bore some of you, but since I had no idea what I was facing, different people's detailed accounts really helped me prepare for minor things I may not have thought of. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. October 25th had my first Vestibular training they had me bring S. incase the therapy makes me too dizzy to be able to drive. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. The first time I had RAI I had absolutely no symptoms. Find other members in this community to connect with. Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). I resumed my mental health appointments with Dr E. on the 24th of May. Objective: He got out the floor roll to start working on my leg muscle as well man that hurts. HHS Vulnerability Disclosure, Help I was told that frequently they run early. The surgery before me was running late and the clock just kept getting later and later. I woke up with full back and neck in spasm do to previous athletic neck and back injuries. I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. I am still having the constant dry mouth and the metallic taste is still annoying. Anyway this is what is going on now. Although, I highly recommend going somewhere where you can be alone (not a hotel). Now, the scar. I have been constantly monitoring my weight and diet, and have been able to keep it in check till now. I have had unexplained "symptoms" including but not limited to: chronic sinus infections, severe neck pain with left arm numbness and tingling, severe "random" aches, pains and stiffness, chronic "IBS," chronic flu like symptoms; chills and nausea, constant lethargy and sleepiness, chronic diarrhea, rapid irregular heart beat and my weight went from 128 to 116 in the last two months. Thyroid function labs were all within normal range. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. They want me < .1. I had to use the urinal, but it is just easier to use it in the bathroom than in the bed for me. It came back normal non cancerous. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. She explained, again, that the surgery before me had become unusually complicated and apologized for the wait. On the 6th I had my hearing test from my 2nd ear surgery, it came back that my left ear is defiantly almost perfectly recovered (to what bone conduction reads) and said I will not have to worry about hearing aids for a few years at least. Double check with your insurance even if your dr and hospital say you're covered. Get the latest news and education delivered to your inbox, Receive an email when new articles are posted on, Please provide your email address to receive an email when new articles are posted on. That was pretty much the best thing I've ever eaten! The doctor says it might not ever be the same. Four weeks after her surgery, the patient presented to our clinic. Vascular dilation on the other side of the face may or may not be present (Figure 1). I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? . You are now HYPOTHYROID. Thorsen RT, Dssing H, Bonnema SJ, Brix TH, Godballe C, Sorensen JR. World J Surg. I was told to get naked and to put on a gown called a bair paws gown. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. At 6pm when I still wasn't in surgery I had them phone him and he was just arriving in the lobby. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. My experience with thyroid cancer- so far: Mentally I feel like I have cleared this massive hurdle. July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. They have removed most of the mole on my eyebrow and sent it to be checked for cancer. First, let me say, I don't like iced water. If they kept me overnight, the plan had always been for him to go home for the night. 2 Mar 2011 1 year from being told I have cancer. We got to know each other, and exchanged some friendly banter on a variety of topics including football and hockey. I hope this helps someone worried about what the surgery will be like. You will experience some discomfort at the incision site as well as a raw or sore throat from the breathing tube that . My salvitory glands swelled up a bit and were sore the first day, my sense of taste just minorly changed and was a little fatigued/headachy for a couple days. Twenty-eight patients who had undergone thyroidectomy and 28 healthy . One more (indelicate) thing, take the stool softener they give you. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. Dr H. thinks everything is looking good and she retires on the 19th of Aug. After 7 days I went for my body scan. I had my TT exactly 2 weeks ago. After the physical therapy I will probably be attending my first cancer survivor group at Bremerton Naval. Are you sure you want to block this member? In January I was beginning to have a hypersensitive gag reflex. That said, I was in very little discomfort and did not even feel that much of a sore throat. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. I had a total thyroidectomy last week. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. The Impact of Post-Thyroidectomy Neck Stretching Exercises on Neck Discomfort, Pressure Symptoms, Voice and Quality of Life: A Randomized Controlled Trial. The surgical pathology reported a 5 cm papillary thyroid cancer in the left lobe of the thyroid with lymphovascular invasion, microscopic positive surgical margins, with five of 59 positive lymph nodes (two left level IIA nodes, one Delphian node and two level VI nodes). I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. Linking evidence to action: Increased swelling, redness, or drainage from the incision. Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. That seems crazy low, is there any benefit at < 0.1 vs < 1.0? DON'T get a tonsillectomy with your TT. Both doctors answered every question openly and forthright. I did. Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? I had to drive to Denver three days in a row. Unauthorized use of these marks is strictly prohibited. Everyone was extremely professional, everyone was very nice. My Endo says I still "have" cancer (I wanted to clarify) not sure when that Dx will go away but I've read 5 years (is this true?). mcg of synthyroid. Next for me is RAI and then WBS. It's a scary place I don't really want to go back to. I also gained 30lbs last summer. It continued for maybe a couple of weeks and always took me by surprise. Just to briefly give my details again. So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). I knew something was wrong last June 2014 talked to my doc about a strange pain in my neck. The terror at night is gone, I'm feeling calm and back to myself. I don't remember exactly when he left. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. I know its a bit silly but I am kind of nervous of attending the cancer survivor group. So, I expected the experience to be a bit like an assembly line. I also feel sad that my recovery has stagnated and I don't see any improvement in my voice or breathing. Mine is Synthroid and it really is noticeably better. The initial clinical suspicion pointed to a haematoma, but a needle aspiration showed chyle. We were told it is papillary cancer but the aggressive kind, so he will need a pet scan every 6 months. was it there all along? It has been 3 weeks today since his surgery and he is experiencing these symptoms. By really looked into it I mean I called lots of doctors looking for one to do the robot assisted surgery. They brought him back to see me in pre-op again. Most people start to feel recovered in 10 to 14 days. Within half an hour I was being wheeled to the elevator to head down to the first floor. This is very long and is intended for people new to the group who haven't had surgery yet. 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. Numb feeling on the front side of my neck between my chin and incision. Due to this, I strugelled for over 2 weeks with swallowing. 30 Nov 2011 Official Retirement from Navy. disability; neck pain; neck stretching exercises; thyroidectomy. Has anyone else had this problem? But, you could tell pre-op was used to people popping in for a brief stay and then being whisked off to surgery. They both gave me their reasons why. Yeah! Numbness or tingling of fingers, toes, or around the mouth. The middle cervical ganglion and the sympathetic trunk lie posterior to the thyroid gland close to the inferior thyroid artery within the thyroid bed (Figure 2). Once again, have never had that problem nor do I know anyone personally who has any issue whatsoever. The people taking care of you know what they are doing and will make sure that you come out on the other side of the surgery just fine. Hi, Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. It has been beyond informative and makes a huge difference knowing there are people out there that understand. She felt my neck and again felt nothing and sent me on my way. Although there are a limited number of studies showing effects of neck stretching exercises following a thyroidectomy in reducing neck discomfort symptoms, no study has specifically dealt with and examined the effect of neck stretching exercises on neck pain and disability. Would you like email updates of new search results? Can it spread fast?) Do to how well the first surgery I was not expecting any problems although I am always nervous about surgery. 2. Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. PMC So I went on my low iodine diet (lid) for 2 weeks - I screwed up and had been using coconut milk with carageenan in it so I had to do lid for two more weeks! Regarding the pain levels and my voice. I feel very lucky. This was a process of 1 10 min neck scan followed by a 40 min full body scan and then a follow-up 10 min scan for an area that wasnt clear on the first scan (guess I moved too much) but I was informed by the tech unofficially that the scans looked clean. For me, this was the only appointment at which anyone even discussed paying up front for services. He said he would test the tissue during surgery for cancer. Increase in pain at the incision that is not relieved by pain medication. On June 10 I had my follow-up with Dr H. for the thyroid removal and got another unofficial look at the CT scan. Another trip to Madigan with another appointment with ENT at Madigan. I have heard some things from Dr's here I question a little bit (As I told some people before no low iodine diet was ever recommended etc although I did a 5 day extreme low one so . ). I have papillary thyroid cancer with a follicular variant. I had RAI in first week of Feb and started with 150 mg of levothyroxin, which was reduced to 125 mg last week after my first follow up. I remember my throat hurting pretty badly. I quickly ordered mac and cheese and mashed potatoes. It took 26 minutes. If skin is not sufficiently retracted after 6 months, anterior neck lift or lower face/neck lift should be a consideration. She stated that they would not give me a definite Clean till I am 1 year out of radiation treatment. The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. I was diagnosed about a year ago after my dentist noticed the side of my neck was a bit raised. I didn't sleep even a minute. It's a mild annoyance to have to take it every morning, but I feel exactly how I did pre-surgery, and was able to go back to college and get through my hardest semester ever with no feelings of fatigue or anything. We also scheduled appointments for me with the same nutritionist that S. has been using for her weight loss. You might also have to take supplements after thyroidectomy to balance your calcium levels. I had quit my job to start graduate school last fall and then had to defer my graduate program to next year because I couldn't continue during the winter quarter. Do they usually biopsy Lymphnodes during TT? I also felt myself getting hungry which was a good sign. Ask questions on here. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. So, that worked out OK. Figured I'd chime in with my own experience, since everytime I see posts it sounds like a thyroidectomy is the worst thing in the world and its better just to live with thyroid cancer. If anyone has / had the same issues, any info on them would be great. Then, they hit me with propofol and the lights went out. 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. I've always had the pain when coughing hard. Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. We talked a bit before he left (he's a great guy and a better doctor). I was advised to see an endo ASAP. She kind of blew me off although she did do a thyroid TSH test and it was "normal". The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. Surgery lasted 6.5 hours, NO LYMPH NODES REMOVED, but complete TT. The first four days or so were the worst. The participants were randomly assigned either to the stretching exercise group (n = 40) or to the control group (n = 40). 2012 w/ different Endocrinologist, found 6 very large lymph nodes in neck. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. We watched tv and I prepared to watch the Monday Night Football game (pretty much normal for me). People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. However, there are some things that everyone can expect with any type of thyroid surgery. The morning after your surgery, you can take a shower and allow water and mild soap to run over your wound. 4) They plan to suppress my TSH which will make me Hyperthyroid. I do remember them asking me a few times if I was in pain and giving me more pain medication. I'm no singer but I do talk too much, so I was really worried I wouldn't be able to do so for an extended period of time. All internal stitches and only steri-strip on the outside. Prior to RAI some surgeons recommend T4 and Thyrogen (which is what my surgeon did at our pre-op visit) and some recommend T3 temporarily and going hypo. He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. Post-Operative Instructions for Parathyroid Surgery. So he sent me for Thyroid level tests and a Thyroid ultrasound. He also informed me that because my mother had a pheochromocytoma, I was at particular risk for MENS syndrome and medullary thyroid cancer and so were my children. After hours emergency: A/Professor Miller's mobile - emergency only please. I was diagnosed by chance, I was actually post op on back surgery and I mentioned to my neuro the pain in the back of my neck, he ordered a soft tissue MRI and this was discovered. My partner, expecting me to be in surgery by 4pm, had left around 3:30pm to go to a nearby hotel and take a nap. When I got home around 2pm Tuesday I had never felt more comfortable in my house. My voice sounded horrible for about 6 weeks and I have weakness on one side of my vocal chords. government site. I am still thinking the level of Synthroid is low for me but according to Dr Ch. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer.
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